< back to search results

GRANTED!

Wish Granted by: animallover maremal 1234mikedeb Tikitu QuietAngels krystyia quiet daryllboothe WishUponAHeroFoundation LimeyAngel mommyof11 justine67 mom432 ANonyMouse AuntieBob toni67 WISMAMA128 MoreWishes 6timber Bluebell momof9 heidipeg markey1966 magghemay27 Bill49 onewhocares GuardiansAngel mfowler5 sugard7777 luvangel Mar 20, 2009

I WISH For Help With Son's Transplant Expenses

I had a wish up for this back in October. Although it was not fully granted, I closed it because it had gotten "lost" in all the new wishes.
My son Jordan has a rare life threatening illness called Severe Chronic Congenital Neutropenia, Kostman's Syndrome,and will be getting a bone marrow transplant soon after his 16th birthday. Before the transplant he will have many appointments for cardiactric testing, pulmonary tests, dental and vision etc...along with all his regular PCP visits.
These appointments will be 2 hours away. We have applied for a grant to help with the donor search and a preliminary search has been started. He will be admitted to the hospital and undergo 1 week of massive chemo treatments and will remain after the transplant for 1 month.The hospital will try to reserve me a room at the family house at $15 per day. After that, he will be put into an apartment at the patient house for 2-3 more months, where I will have to stay with him as he will need 24/7 care. I will be responsible for my expenses such as food, travel, housing ($15 per night..3-6 months) etc., and any uncovered expenses for him, meanwhile still paying bills at home and the gas for his brothers and dad to come visit him. At this time, I am needing to raise approx. $1800 (added to the $250 I have received ). There is a bus the comes every Mon to the family house that goes to Wal-Mart, so GC would be great too. Even though I can't leave, another resident there will get things we need for us. Any help is appreciated..and prayers are always welcome and needed. Thank You.

**Verified by security**


 
This wish has received $685.00 in donations.
Type: Need
Wisher: behindtragiceyesverified member icon
Added: Feb 21, 2009 - 3:43 pm
Wish is for: Family
Country: United States
State: West Virginia
City: Belington
Category: Healthcare
Sub Category: Procedure
Views: 3382
Comments: 51
Favorite: 13
Share |

IP Check:
1 accounts
What is this?
Add to Favorites
Share this Wish
Wisher Profile
Flag as Inappropriate

behindtragiceyesverified member icon
Has Granted: 14 wishes
Has Been Granted: 5 wishes

 

    Offers (30)

  • animallover 16 months ago - Accepted!

    Transaction ID: 7PS06831UF441061K, a small Paypal donation has just been sent for you. Best of luck.

  • maremal 16 months ago - Accepted!

    Since your son's birthday is in April and that is my favorite month- mine is in April, too, and my father will be 90 years old this April- I have to help with this wish! PayPal donation is coming your way! Marianne

  • 1234mikedeb 17 months ago - Accepted!

    We would love to send A few dollars . Sorry we don't have more.
    Also can you talk to the hospital about food vouchers?
    I will the money paypal.

  • Tikitu 17 months ago - Accepted!

    I've added a little more. Transaction ID: 9XG50112M4384752B

  • QuietAngels 17 months ago - Accepted!

    We are glad to see many heroes for you. We would like to add a little too. May this addition help get you closer too. Our thoughts and prayers will be with both of you. Best wishes, Quiet Angels

  • krystyia 17 months ago - Accepted!

    Transaction ID: 6XM051038L967830V - $15.00. Sorry it's not much but I hope it helps!
    Take care,
    Kristine

  • quiet 17 months ago - Accepted!

    just added a little more via paypal trans #05E42582AC7627213
    and also adding him to my daily prayers. God bless. sue

  • daryllboothe 17 months ago - Accepted!

    I am making a donation also. God bless you and your precious son (he is such a handsome young man). You two have a tough road ahead and please remember God loves you and wants the best for your whole family...and with so many prayers, I don't see how this can miss.

  • WishUponAHeroFoundation 17 months ago - Accepted!

    Member themomma18 has selected your wish for the Pay It Forward Wish Grant. We will be sending you $50 by paypal.

  • LimeyAngel 17 months ago - Accepted!

    Here is a little more to help you. Transaction ID: 27062990R1355784D

  • mommyof11 17 months ago - Accepted!

    Hya hon! I am with little funds right now but I would like to send a $5 gift card. Let me know if you would rather have McDonalds or WalMart. Also, my offer still stands if you need transportation, just let me know and I will help in that way! God bless! HUGS!

  • justine67 17 months ago - Accepted!

    I can't help with funds but free coupon for a dinner entrée hope it helps some :) http://www.kashi.com/picturehunt

  • mom432 17 months ago - Accepted!


    Transaction ID: 9XV17252B85524424--Just a little more help

  • ANonyMouse 17 months ago - Accepted!

    A little more added. Transaction ID: 36U24443YE015422K

  • AuntieBob 17 months ago - Accepted!

    LOL....just cuz I dislike uneven numbers. ;)

  • toni67 17 months ago - Accepted!

    I can help with a value meal 1KR89471MU400273J

  • WISMAMA128 17 months ago - Accepted!

    I would like to send you a WalMart gift card. My thoughts and prayers are with you, Jordan and your family. Please PM your info, thanks.

  • MoreWishes 17 months ago - Accepted!

    A bit more added to your Paypal :D

  • 6timber 17 months ago - Accepted!

    Hi! Just added $100.00 into your paypal account. Trans. ID 22P06635RU781705V

  • Bluebell 17 months ago - Accepted!

    Transaction ID: 9V694306GD243784C, $15.00 from my daughter. Love and Light, Bluebell

  • momof9 17 months ago - Accepted!

    Transaction ID: 7VK25118JV232015Y, 16.00 sent your way, sorry its not more, under bhope4u, God Bless

  • heidipeg 17 months ago - Accepted!

    I will send a little snail mail. Please send info.

  • markey1966 17 months ago - Accepted!

    My prayers are with you and your boy. Here's some help toward expenses. God bless!
    Transaction ID: 6H815528LK580635K

  • magghemay27 17 months ago - Accepted!

    we don't have a lot of loot, but if you send me a snail mail addy , my family would like to donate 20.00 towards a night stay :)

  • Bill49 17 months ago - Accepted!

    Would a $20 Walmart gift card help out? If so, please PM me with name and mailing address.

  • onewhocares 17 months ago - Accepted!

    Adding $40 to cover a couple nights, in honor of my two HEALTHY 3 & 4 yr. old granddaughters. May Jordan also gain much better health. Transaction ID: 38N633162D934161N

  • GuardiansAngel 17 months ago - Accepted!

    I can help a bit with 5 packs of crackers. I wish it could be more. I send you all my deepest thoughts and prayers. Transaction ID: 10910031LA765042J Hugs to you all, Shari

  • mfowler5 17 months ago - Accepted!

    Here is $60.00 more. I sure wish I could do more. You all will be in my prayers! Trans ID #3YV53352HM256753W

  • sugard7777 17 months ago - Accepted!

    Hi..I do not have much, but here is the transaction #37161927XB612423E for $60.00 (4nights) 1 for each of my healthy children

  • luvangel 17 months ago - Accepted!

    ok I have donated the funds for first night stay
    Transaction ID: 9EK48394J42447053

    come on heroes who has the next night

Comments & Responses


remaining characters  

  • behindtragiceyesverified member icon 16 months ago

    I am unable to put into words, how the generosity of the heroes here has touched my family. We appreciate it more than you can know and will never forget how many of you have blessed us. In our eyes, you are angels watching over our child, and with all the prayers being sent, he has so much in his corner.
    If any of you would like to be kept up on his progress, or receive a copy of the flier for his fundraiser, please feel free to PM me or email me. I think I have already sent it to those who have asked..if not, please let me know.
    Thank you, and god bless you all.

  • ggpat3 14 months ago

    I don't know if it's too late but I just sent a small donation by paypal. I'm new to this and don't know the ropes yet. It would never occur to me that you were trying to scam us. May be I'm too gullible but that's OK I'd rather be trusting that always thinking the worst about people.

  • Ladymongoose 16 months ago

    I sent what I could :) Hope this helps a bit. Best wishes to you!

    Transaction ID: 2C4754010E473301W

  • behindtragiceyesverified member icon 16 months ago

    Just a note to once again say thank you to all the heroes who have blessed my family. I have received all but 2 of the offers. I will be closing this wish at the end of the week. I wish to thank all of you who didn't question my honesty, even before this was verified. It does break my heart that the dishonesty of some causes overflow onto others who are being honest. I sincerely hope I have not done anything to cause the suspicions I know exsist. I have answered every question asked of me to the best of my ability. I have also shown every bit of proof I have up to this date. I cannot answer things I have yet to be told the answers to.
    Please know that I appreciate everyone's kindness so much more than you realize, and I will never forget "my heroes".

  • behindtragiceyesverified member icon 16 months ago

    Wishbone..The financial adviser at WVU is the one handling the ins. fiasco. I am told that is how it is done with this kind of procedure. I have received a call from the ins. company myself once and discussed it in detail. The lady from the ins company told me the transplant will run around 250.000..if we stay in WVU, they will NOT pay more than 30,000. We also received a letter from them telling us if we have it done at WVU our MAX benefit is 30,000. If we have it done at a hospital they are contracted with, they will pay more. If it was because he would receive better care somewhere else, or there were any violations or medical reasons why they didnt want it done here, I'd have no problem leaving..but it hasn't anything to do with that. It is simply because this hospital is not one they prefer.I will be talking to a social worker on the 23rd when we go back, as well as the search coordinator and financial adviser.

  • wishbone 16 months ago

    Did WVU assign you a social worker?

  • wishbone 16 months ago

    I don't mean to offend but it is my understanding that insurance coverage is between you (private party) and the insurance company. What the hospital bills goes to your (private insurance). All insurance companies have fee schedules but I believe that is not done on a doctor or hospital schedule, rather it is done by what is customary for the area. Was the amount you were precertified for $30,000 for the medical procedure?

  • behindtragiceyesverified member icon 16 months ago

    LUCY I apologize, I was going by her asking why the hospital would have us relocate,just explaining that it was the ins. company, not the hospital.
    The ins. company did not tell ME for the whole family to relocate, they told the financial adviser at our hospital. I have only spoken with the insurance once and was told flat out that our max. benefit if we have it done here, where he has been treated for 11 yrs, would be $30,000.00 period.
    Yes, we would all like to be with him. It would be impossible if he and I have to go across the USA, because my husband cannot leave his job, he'd lose the ins. then anyway. Why they would suggest it? who knows? it seems ridiculous to me.Bottom line is, we are NOT going anywhere except where he is now and has been for 11 yrs. WVU is JUST as good as any other hospital and it offers much more, they just don't have a contract with this ins. company. I am not trying to raise funds to go elsewhere. Yes it includes the $250 from previous wish.

  • Lucy 16 months ago

    I think what cherishedteddie is asking is why would the insurance company tell your entire family to move? All they should care about is that your son and a parent stay there. Did they actually tell you that all of you must move or is it that your whole family just wants to be with him (which I would understand)?

    I have a question too. Does the amount shown here include the $250.00 from your previous wish? I know you need much more money but I'm trying to figure out how much I can donate and was wondering.

  • behindtragiceyesverified member icon 16 months ago

    Cherishteddie..What i was told a couple days ago from the financial advisor is: The ins company wants my WHOLE family to relocate for the 3-6 months in order to go to a hospital THEY have a contract with. WE want to stay at the hospital that has treated him for the last 11 yrs..and knows his illness. Not to a hospital that has never treated his illness..just because the ins co. has a contract with them. The way it is now..at the hospital in my state..me and Jordan will stay..husband and other kids will be at home. The hospital never told anyone to relocate..the insurance company did..and the hospital is filing an appeal to keep him here. That is what the post on GON states. I sent documentation of this wish to admin and security here, not sure why it hasn't been verified..but, when this was posted, we were not told yet of the ins. company's wishes..bottom line is..my son is more important than the ins co. and I will fight to keep him where he wishes to have it done.

  • cherishteddieverified member icon 16 months ago

    I am sorry to say I'm confused. Your page on needyorgreedy that has raised $110 so far says you may have to relocate for 2-3 months, the entire family.

    I thought just you and your son was going to the transplant hospital and your husband and other son staying at the house.

    I just don't understand why a hospital would tell the entire family to relocate.

  • iamatpcatwork 16 months ago

    I love seeing the great responses on this wish. I am hoping for best for your son, who I feel I have "known" now for 7 years...

  • BratsPrincessverified member icon 16 months ago

    Prayers still going up for you and your son!!

  • 1234mikedebverified member icon 17 months ago

    We where only able to send $2.00 . We wish we could do so much more . please keep us all posted on how he's doing, and on you and the rest of the family are doing .

    With much love
    Mike, Deb , & Family

  • behindtragiceyesverified member icon 17 months ago

    Tinkerbell76..first let me say, I hope everything turns out alright with your baby. I will definitely keep you in my prayers!
    I looked at the link you posted..the hospital gave me a packet with all that in it =) We have already applied for a grant to help cover some of the donor search costs through them, and the hospital has started a preliminary search for a donor on the NMDP Registry. We have yet to hear if we will get a grant, and if so, how much. The rest of what they help with is treatment within 6 mos. after transplant...so we will have to apply again at that time. You submit a bill and a request to pay it, and they either do, or reject it.
    Good luck with your baby..God bless and watch over you both!

1 2 3 4 | Next >>>(51)