Hello, my name is Kim. I am a mother to 4 great children, 3 boys
ages 8, 6, and 5, and one girl age 4. This wish is for a cooling
vest for my 5-year-old son.
Josh has a seizure disorder, heart condition, and global
development delays. His most recent diagnosis has been the most
troubling for us - anhidrosis (inability of the body to sweat). It
can be genetic or caused by things like medication or burns. Josh's
is genetic, his grandmother also had this condition. There are no
effective treatments, so we have to learn to manage.
To give you an idea of how it affects Josh... He can overheat in
the middle of winter if dressed too warm, or in just a long sleeve
shirt and pants if a building is too warm. It doesn't take the sun
to overheat him, but being in the sun will speed it up. His face
flushes to various shades of red and purple. He tells me that his
face hurts when this happens, and he gets a horrible headache. It
can take him a couple hours to be back to normal.
It is scary to watch this happen. A heat stroke would be horrible
for anyone, but more so for him with his heart condition and
neurological problems (dr's think there is more going on than
seizures, testing to find out). My sweet boy deals with so much and
doesn't let it slow him down. He is a typical little boy that likes
to play hard and loves being outside. We already know that he and
his siblings are going to be severely limited on their outside
playtime this summer. They'll learn to adapt.
My biggest concern is that we may not be able to keep him cool
inside. We live in Colorado, where, like a lot of people, we don't
have air conditioning. Weather forecasters are saying we are in for
a very hot summer. I don't know what we are supposed to do to keep
him cool without a cooling vest, and we can't afford $225 right
now. We are usually okay, but right now we just don't have it. If
there is an angel or angels that can help with this, we would be so