Our home is not designed to meet the needs of a growing child with
triple disabilities nor a parent who is a disabled veteran. Alex
has a great need for safe, environmental enriched, adapted living
spaces and play areas.
Limitations start from the walkways to inside the house, and to the
backyard. Our home does not foster independence, exploration, or
free play for our little girl; instead, it creates barriers, which
has become unsafe for all of us.
This is the need - for a safe, environmental enriched, adapt living
and theraputic spaces for Alex's home .
Alexandria who goes by Alex is special. She is playful, smiling all
the time, expressive with her eyes, loves to socialize with her
peers and her pets. She needs 24-hour supervision, and is totally
dependent on others to meet her basic needs. Alexandria goes to a
extensive number of therapies (speech, physical, hippo) daily. The
experts recommend no less than 8 hours a day of such programs
â€“ each and every day. As
Alexâ€™s parents, life has simply become a
day-to-day endurance course. We don't have a frequent flyer's card
but we should since we travel to different states to receive
services which we can not get in New Mexico.
Alex is more than just a label (Rett syndrome). She is a little
girl with spunk, a child above all labels, who can be anything she
wants (even a Princess and a Shriner's kid) with the right
environment and tools. She is always trying to move, whether in her
walker, in her high chair, or car seat. Seeing Alex safe, grow
taller, move, and chuckle (at times), makes it an honor to be her
I am a very proud father and realize Alexandria makes me want to do
more as her dad. Simply put, I try my best each day (even if it has
to come down to each hour of the day) and to not forgot to make
memories with those people who you love.
To find more info go to poulsenhomemodification.com