So for those of you who don't even know what Mitochondrial Disease is... the very simplest way to describe it is your city trying to run on one triple A battery.

The body can't not convert food into energy, the mitochondria in our cells are powerhouses that generate the energy. It mitochondrial disease these mitochondria are dysfunctional or simply just don't work.

Most people with Mitochondrial Disease have at least 3 organ systems affected... This is the first red flag of Mito.

It falls under the umbrella of Muscular Dystrophy. Many adult onset disease like Alzheimer's is now being linked to Mitochondrial Dysfunction.

Reiley has had issues since birth... and as she grows older some of those issues are getting worse... as with this disease, it is degenerative... the prognosis - as of right now as there is no treatment, and obviously no cure, is death. Death usually occurs in 80% of those diagnosed before the age of 5, just before they hit their adult years.

As you know or may not know many of our friends have lost children this year already... none of them over the age of 8 years old... others I know are in their late teens and others diagnosed later in life are in their early 20's but none of them are doing well and doing everything to keep up their fight against this disease.

It is truly devastating that we can make a little blue pill for the penis to stay erect for hours on end, yet we can't even have a treatment in place of something that kills more children than all childhood cancers combined.

So there is your little Mito lesson.

Not only does Reiley have a fatty acid oxidation disorder called SCAD - Short Chain Acyl CoA Dehydrogenase Deficiency, but she has Mitochondrial Complex issues as well... which is not 'typical' We know she has II III, low IV and severe psychiatric issues. We need to get her to a Mito specialist whom is out of state, our medicaid will not pay for it.

We are asking for assistance.

Wish Info

• Posted: Jun 29, 2012 1:22 pm
  Granted: Aug 6, 2012

• Member: Snooze122
• Member Since: May 4, 2012
• Wishes Granted: 2 times

• City: Maricopa
• State: Arizona
• Country: United States

• Type: Need
• Wish is for: Child
• Category: Medical & Healthcare
• Cause: Psychological Disorders

• Views: 486
• Comments: 7
• Follows: 0