Help giving 4 year old twins with neurofibromiatosis their first real christmas

My name is Denise and I am making this wish for my god son and god daughter whom I have taken over care of as their mother is terminally ill. We went and picked them up two weeks ago because her health had gotten so bad that she was having a hard time getting up and doing basic daily things to care for her and the kids. When we moved them they had only clothes and two toys to bring with them. I have paid the bills in our home for the month of November and gotten everything thing of basic’s they need. My wish though is for Christmas. I know with the economy the way it is and multiple trips to iowa city to the neurofibromatosis clinic as well as the neurologist for Sammy and the orthopedic surgeon for Alora Christmas is going to be tight. Alora and Sammy are 4 year old fraternal twins who have both been diagnosed with neurofibromatosis type 1 since they were 2. Sammy has seizures and has over 500 spots that will eventually turn into tumors on the nerve endings where the café-au-lait spots currently are. They both have speech and developmental delays as well as emotional delays for which we are getting treatment started. Alora will be having surgery to correct the bowing in her legs as well as correct the fact one leg is shorter then the other. They are both happy and never expect anything. I am wishing for help to provide them with their first real Christmas. They have never seen Santa never had a Christmas tree or presents to open on Christmas day. Any help even in a small way would help create a first Christmas for these two loving kids that is 4 years in the making. I have with the help of the twins put together a wish list of things that they would like

Wish Info

  • Posted: Oct 27, 2012 5:29 am
  • Member: deniselynbrown
  • Member Since: Apr 6, 2012
  • Hero: 24 times
  • Wishes Granted: 0 times
  • City: Des Moines
  • State: Iowa
  • Country: United States
  • Type: Want
  • Wish is for: Child
  • Category: Holiday Wishes
  • Cause: Other
  • Views: 234
  • Comments: 12
  • Follows: 0

1 Accepted OffersLast offer 6 months ago

*Guest offers are automatically accepted, and do not appear in the list below.
  • barb539 6 months ago - Accepted!

    I ordered the Mega blocks

Comments & Responses


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deniselynbrown 6 months ago

thank you barb539 the blocks arrived and have been wrapped and put up for christmas for little miss alora. We are heading to the eye doctor tomorrow as sam is complaining of his eye hurting and we are afraid that he may now have a tumor on his optic nerve..We are praying that is not the case.

deniselynbrown 6 months ago

I want everyone to know that I appreciate the thoughts and prayers. WUAH is a great community.

deniselynbrown 6 months ago

She has signed gaurdianship papers and has a will that spells out her wishes for the care of her children

mommie817 6 months ago

i hope you get more heroes

mommie817 6 months ago

wtg barb!!!!!

marxygirl 6 months ago

but who will take them if she is terminal you need to make plans if you wish to give them a home. so they dont end up in th system

deniselynbrown 6 months ago

Thank you barb539

deniselynbrown 6 months ago

Their mom lives with us marxygirl. We took all three of them in. My husband and I provide care for all three of them.

marxygirl 6 months ago

you might want to get your foster care license sh cant just give them to you you hav to go through social services. i would get that startd

kimbaker 6 months ago

yw hun hugs

deniselynbrown 6 months ago

thank you for the prayers kim

kimbaker 6 months ago

your family is in our prayers hun hope you get a hero