My name is Denise and I am making this wish for my god son and god
daughter whom I have taken over care of as their mother is
terminally ill. We went and picked them up two weeks ago because
her health had gotten so bad that she was having a hard time
getting up and doing basic daily things to care for her and the
kids. When we moved them they had only clothes and two toys to
bring with them. I have paid the bills in our home for the month of
November and gotten everything thing of basic’s
they need. My wish though is for Christmas. I know with the economy
the way it is and multiple trips to iowa city to the
neurofibromatosis clinic as well as the neurologist for Sammy and
the orthopedic surgeon for Alora Christmas is going to be tight.
Alora and Sammy are 4 year old fraternal twins who have both been
diagnosed with neurofibromatosis type 1 since they were 2. Sammy
has seizures and has over 500 spots that will eventually turn into
tumors on the nerve endings where the café-au-lait
spots currently are. They both have speech and developmental delays
as well as emotional delays for which we are getting treatment
started. Alora will be having surgery to correct the bowing in her
legs as well as correct the fact one leg is shorter then the other.
They are both happy and never expect anything. I am wishing for
help to provide them with their first real Christmas. They have
never seen Santa never had a Christmas tree or presents to open on
Christmas day. Any help even in a small way would help create a
first Christmas for these two loving kids that is 4 years in the
making. I have with the help of the twins put together a wish list
of things that they would like