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GRANTED!

Wish Granted by: WishUponAHeroFoundation torregro Apr 24, 2009

I WISH equipment and advice for my disabled son

My son is 4 and a high functioning autisitc with a muscle tone problem in his face mainly the mouth . My water broke at 29 weeks and he was born at 32 . He was not swallowing the amnoitic fluid so it did not get recycled and I popped litterally .It was because of his muscle tone in his mouth he could not swallow it .They think it may be related to his disablitybut not sure.He has been to several developmental peds and genetist , and has been in therapies since he was 9 motnhs old. He needs tools to help strengthen his mouth I only have jigglers and can not seem to get the rest of what he needs .http://www.beyondplay.com/ITEMS/T928.HTM this is one of them and the spray flavors to go with it so he will let me do this .He also needs a weighted blanket so he can sleep . He has so much trouble he is always moving .If anyone knows how to make this I would love to know how I know that is cheaper. http://www.beyondplay.com/cgi-bin/SEARCH.PL .He is sound sensitive and I need advice on how to handle that do ear plugs work ?? I have 2 other kids so it is hard to just stay home .He also can not balance on a bike even with tarining wheels I need to know how other parents handle that ?? Any other advice would be great .I feel so bad about the bike thing he put his little helmet on and really wants to and he just falls it is so sad .He really trys .Right now he is regressing agian and he was doing so well . thanks


 
Type: Need
Wisher: angeleyesm2verified member icon
Added: Apr 16, 2009 - 7:49 am
Wish is for: Child
Country: United States
State: Florida
City: pensacola
Category: Healthcare
Sub Category: Other
Views: 375
Comments: 10
Favorite: 1
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angeleyesm2verified member icon
Has Granted: 90 wishes
Has Been Granted: 10 wishes

 

    Offers (2)

  • WishUponAHeroFoundation 15 months ago - Accepted!

    Autism Angels would like to grant your wish for the zvibe!

  • torregro 15 months ago - Accepted!

    I would love to make a weighted blanket for your son.
    If you'll pm me his height and weight we can talk about your needs and I'll get started right away.
    sharon

Comments & Responses


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  • angeleyesm2verified member icon 15 months ago

    Thankyou you all so much . These items were much needed and will make my sons life alot easier .

  • quietverified member icon 15 months ago

    please check out the url below and put your son on the wishlist. make sure you fill out the application. these people are awesome. our son with aspergers has the large tryke through them and it is his love. God bless. sue
    http://ambucs.com/general-info-2/

  • Bridgett707 15 months ago

    I found this website with directions on how to ake a weighted blanket. I hope it helps you. On a personal not God Bless you and your family. You are a strong person and I have always admired people who have the love and comassion to care for children with disabillities. The website is: http://www.fraser.org/tip_sheets/weighted_blanket.pdf

  • REDinIRISH 15 months ago

    when I lived in Florida 20 some years ago the United way helped my oldest daughter she needed special education. The United Way is great they help families in so very many ways. Please try contacting them for your sweet little son :)

  • mommyto5verified member icon 15 months ago

    Best of luck with this wish ,my daughter has cp and autism and I know how expensive everything is and how much of a difference having the right therapy tools makes and for the z vibe tool check on ebay we got the whole kit for lily for what beyond play charges for one part and it was brand new ,blessings to you.

  • mamalamb47verified member icon 15 months ago

    WTG torregro!!! That is super of you!! Hugs, Sue

  • angeleyesm2verified member icon 15 months ago

    I did not even think about paypal I was thinking people would buy them and send them .I am sorry . I will edit tomorrow . I do nto even mind a use zvibe because I know how to sanatize it .I just need one to help desensitse (sp) his mouth and strentghen it . He gags on everything and throws up and I am always getting calls from school even though I tell them he is not sick .Even if he coughs he gags himself .It is crazy I just feel so bad and there is nothing I can do .

  • Alfverified member icon 15 months ago

    What I was trying to say is if you need money to purchase the equipment, post that in a comment on here.

  • Alfverified member icon 15 months ago

    You might want to contact: The Autism Society of the Panhandle. They are a nonprofit, tax-exempt association of parents, professionals and other concerned community members dedicated to the education and welfare of children and adults with autism and related disorders of communication and behavior. http://www.autismpensacola.org/index.htm

    Also if you need help on purchasing the equipment post that is a comment. If you have a PayPal address that might help as well.

  • mum2kazaverified member icon 15 months ago

    I hope you find many heros to help.