as many know our 3 month old son has been in the hospital since
Dec. 9th in PICU and is still here. this am they are doing a CT
scan to see if they can pinpoint the cause of his continued
abdominal pain, diarrhea, projectile vomiting, fevers,dehydration
and tachycardia. they are trying to rule out abscess, appendicitis,
colitis amongst the diagnoses. during this period he has had major
issues with tachycardia, bradycardia and a couple apniac episodes.
since it isn't due to respiratory issues his insurance refuses to
cover it so i will be on my own once we go home in monitoring his
heart, oxygen, etc. the monitor i did have that did this died about
3 weeks ago (it is over 5 yrs old). it would be a true Godsend in
caring for Christopher and alerting us to major crisis. Thank you
for reading this and your continued love and prayers for
Christopher and our family. God Bless.
www.caringbridge.org/visit/christopherbayleetolin/cgi.ebay.com/HEALTHDYNE-TECHNOLOGIES-APNEA-SMART-M
quiet
5 months ago
i want to thank angie, Walk on Heros Foundation, Josh and Therese and Skylab for granting this wish and making sure we have the ability to monitor our son 24/7 and please know that your generosity has been a Godsend and probably a lifesaver. God bless. sue
GrandmaX2
5 months ago
I am so excited to see this wish granted for little Christopher. Thank you so much Walk On Foundation for all the hard work you do!
(((HUGS)))
Donna
WalkOnFoundationInc
5 months ago
Sue, I am excited to inform you that Mrs. Marshall and all the staff at Spacelabs have granted your wish and will be shipping the new monitor (which is portable) next week. We want to express our heartfelt thanks to Mrs. Marshall and Spacelabs for their most generous gift to you and your family. They are true "Heros" You will be in our thoughts and prayers
Josh & Therese
Walk On Foundation
WalkOnFoundationInc
5 months ago
WalkOnFoundationInc. Would like to thank Stu Veeley and Dorothy Marshall of SpaceLab Medical for providing this child with the equipment needed. This should ship out today or Monday at the latest. Thank you Space Lab!!
mamastormy
5 months ago
dear quiet one,
i'm sorry to read that your son and your family is being challenged so greatly.
i hope and pray that soon, christopher will return home a good deal healthier. the other night, there was a MYSTERY DIAGNOSIS (on the discovery heath channel) that had a toddler with the same symptoms as you describe christopher suffers with. i cannot remember what the diagnosis was called. i wish my memory was clearer... the boy's system was actually giving out the wrong signals and fighting against itself. i should go google. i can't imagine having my child in such scary health circumstances. please know that many here have you in their hearts and prayers... i am so happy the monitor is being provided to you. xoxo
quiet
5 months ago
i want to thank everybody for their generosity, caring and prayers for Christopher and our family. he had another crisis the last 30 hours with high fever, diarrhea, projectile vomiting, tachycardia and bradycardia. the doctors have him back on 3 iv antibiotics and are awaiting labs due back today to totally rule out ischemic colitis. Christopher sure has kept us on a long rollercoaster ride and is so full of surprises. i would love to be able to get our big monitor fixed as it tells it all but the generous offers here for the monitor will be a total blessing and true lifesaver for Christopher. thank you ALL heros. God bless.
angiew 6 months ago
Where is Ruth Mi, I have a apnea machine I put on craigslist but you could have it
WishAmbassador
6 months ago
Dear quiet,
A Wish Ambassador is currently working on your wish. The main goal of a Wish Ambassador is to help facilitate the granting of wishes. This is done through emailing, sending letters, and calling companies. Your Wish Ambassador will contact you for details and any questions she may have. We are honored to have the opportunity to work on your wish!
WalkOnFoundationInc
6 months ago
Hello, I have contacted Spacelabs and a others and will keep you posted
Therese
mommie817
6 months ago
hun i have fav your wish i contacted the ebay member on the link you have if i can i will come back to check hugs
quiet
6 months ago
Christopher is just back from CT now i await the verdict as to what is going on with our little blessing and pray whatever it is it is fixable. thank you all for your kind words and offers to help us obtain this for Christopher. God bless. sue
patty700 6 months ago
Hi,you can google hoozers or(space)yahoo(space)profile for and then the company of the medical device that broke.This will give you the C.E.O.s number or some one just as high up.Pray and tell them your story.You have there product already so they should have a heart and switch it out.God bless you all.
mommie817
6 months ago
wtg walkonfoundation you rock god bless
jenstooswt
6 months ago
I pray you find many heros. I wish I could help. God bless
WalkOnFoundationInc
6 months ago
Hello, we will be making some contacts on you behalf and will keep you posted on our progress