GRANTED!

Wish Granted by: WalkOnFoundationInc markey1966 laydeezchoice magghemay27 animallover Tikitu wannabehugo May 24, 2010

I WISH Medically needed suit for child

Hello everyone I am a single mother of an 11 year old child who suffers a rare medical condition. He has been featured in Parent's Magazine and on several shows such as Montel Williams and John Walsh. My son's condition doesn't allow him to get to warm whether its from physical activity, or fevers, or the sun. If he gets too warm he immediately suffers from hives that within 12-24 hours turn into painful oozing blisters which scar him permantly, facial flushing, stomach cramps,diarrhea,decrease in blood pressure, and sometimes vomiting.
The doctors label PART of his medical condition "Overactivity of the Cholinergic Nervous System" and Subepidermal Bullous Dermatitis. Because of this portion of his medical condition he wears a specialized suit in the summer with a cooling vest to keep him cool at all times. Due to recent financial constraints I have been unable to purchase his suit. The material for the suit was used for the astronauts and it requires special machines to sew the suit. The material for my son's suit has been donated to the seamstress who makes these suits for children with these special needs and who has the special equipment to make these suits. My son's cooling vest has already been donated to us. However he still needs the suit itself which costs $450.00. We are in a fragile position right now because I am barely making ends meet and my son needs this suit to go outside in the summer months. His only refuge from the summer months is his suit and indoor ice skating neither of which I have been able accomplish for him. If anyone out there could help us purchase this suit we would be eternally grateful. I do not receive child support (I was assaulted) therefore things are very tough at this moment for us. We thank anyone that could help us in advance. God Bless You!
The paypal account belongs to walkonfoundation who has given us authorization to use their pay pal account for my son. They are trying to help us also. Thank you Walk on Foundation!

 

This wish has received $140.00 in donations.

Type: Need
Wisher: Santrea
Added: Mar 27, 2010 - 6:04 pm
Wish is for: Child
Country: United States
State: New Jersey
City: Woodstown
Category: Financial
Sub Category: Fullfill a need
Views: 864
Comments: 32
Favorite: 7

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Santrea
Has Been Granted: 1 wish

 

Offers (7)

• WalkOnFoundationInc 5 months ago - Accepted!

  Walk On Foundation Inc. would like to thank the many heroes who have stepped up to leave a mark in this boys life. Walk On Foundation Inc. will be matching your contributions and sending the full $450 directly to the seamstress so Santo may receive his suit. God Bless each and every one of you!!!

• markey1966 5 months ago - Accepted!

  I auctioned off a Dolly Parton autographed photo for this wish. At least $30 will be sent through PayPal today. Thanks also to Marie (Overwhelmedbystress) and Linda (ladeezchoice) and my friend Lisa for participating in the auction.

• laydeezchoice 5 months ago - Accepted!

  I have added the remaining balance to the paypal account so we can close this wish and this sweet child can rn and play with the rest of the children.....God Bless
  
  Linda
  
  Transaction ID: 1BR918391Y106635N

• magghemay27 5 months ago - Accepted!

  In honour of the amazing heroes of walk On Foundation, I would like to donate $10.00 to help this medical wish come true. I will be mailing this to the walk on address provided in comments :)

• animallover 5 months ago - Accepted!

  I'd like to help your son be able to go outside! Paypal $25 sent:7R951530TF321772W

• Tikitu 5 months ago - Accepted!

  If you accept this offer, I will be happy to add $25. to your PayPal account toward your son's suit.

• wannabehugo 5 months ago - Accepted!

  Wow..you have quite a challenge to keep a growing child free to be a child. I would love to send $20 towards this project. I do not do paypal so if you or WalkOnFoundation will send an address, I will get it in the mail. Best wishes to you.

Comments & Responses

• Santrea 3 months ago

  I want to thank everyone for being such angels and helping my son. He is so happy and when he finally received the suit about 10 days ago he asked if he could sleep in it because he was so happy to have gotten it. Thank you so much. He will have a good summer now thanks to all of you! God Bless. Angela

• laydeezchoice 4 months ago

  I am in atlantic city area

• Santrea 4 months ago

  Hi Ladeezchoice,
  
  I am sure he would love that. Where are you in Jersey may I ask? Angela

• laydeezchoice 5 months ago

  whoo hooo i am thrilled and God is our hero, i just listen when he speaks to me. I would love to come and have a picnic, i am also in NJ

• Santrea 5 months ago

  hi everbody i wanted to say thank you to everybody that helped me get my new suit so i can play outside in the daytime and then thekids wont be mean to me for only coming outside atnight time. maybe everbody wants tocome have a picnic with me at the beach in the summer so just write my mom and tell me. thank you for helping me. Happy easter.

• Santrea 5 months ago

  Here is also a documentary that is being made about children who live by night like my son that I thought I would share with everyone.
  
  http://www.kickstarter.com/projects/1978864456/the-dark-side-of-the-sun
  
  

• Santrea 5 months ago

  Everyone who has helped us on this wonderful site and on Walkonfoundation I wanted to share something with you so that you can get a small glimps into what these children go through and although my son's condition is different his needs are still very close to the same. On the link that I will provide you it has both an article and a video that you might like to see. http://www.spfstore.com/Articles.asp?ID=121
  

• Santrea 5 months ago

  Dear Linda,
  
  Markey1966, Overwellmedbystress, and ladeezchoice thank you so very much for your generosity and kindness. I am speechless at how wonderful everyone on here has been so helpful and kind. Walkonfoundation you are such a beautiful organization who really cares and this website is so fantastic. I really am so thankful to everyone here and may God Bless each and everyone of you. Happy Easter! You have made my little guy so happy. Thank you, Angela

• WalkOnFoundationInc 5 months ago

  Thank you to all the heroes!!! Once all funds have reached our paypal or our mailbox we will go ahead and match this. We will then pay the seamstress directly and get this suit rolling for Santo. Each of you please know that you played a huge part in a child's life. You have given the child continued freedom to move about outdoors. What a gift!!!!!!

• QuietAngels 5 months ago

  How much is still needed for this wish?

• laydeezchoice 5 months ago

  Josh please let me know when payment is received...

• Santrea 5 months ago

  Layeezchoice the last I heard we were still needing $115.00 and then we will have accomplished the amount where Walkonfoundation would match and we would have enough. Thank you for your interest. Cordially, Angela

• Santrea 5 months ago

  Thank you for the information Nataliesnana.
  Thank you everyone!

• laydeezchoice 5 months ago

  how much is needed or what is the balance....

• WalkOnFoundationInc 5 months ago

  Santrea,
  
  Yes you should click accept on the offers and send a personal note of thanks. Just do not click on GRANTED until we have collected the full amount of funds and your child has received his suit.