I have a Terminal disease and I need help,

Granted by Heroes: Guest
**VERIFIED**
I am a single Mom of 2 kids a grandbaby.I have a terminal Illness called Alpha-1 Antitrypsin Defeiceny.And both of my Children are carriers of the diseased gene,but do not have the full disease like me.I was diagnosed in 2010 and given 3-5 years.I am on oxygen full-time and need to be in a wheelchair to be out and about.Just recently they have decided I can not survive at home by myself,so My alpha-1 advocate is trying to find placement in a nursing home/rehab center.That also means my 15 year old daughter has to go into Foster care until she is a adult and my son has to move in with his girlfriends parents.We don't have any to many firends or family that care about whats going on.Someone suggested your site to help me keep in touch with my kids and watch my grand daughter growup.I would like to get each of us a Laptop with a camera and microphone with wifi so we can see and talk to each other anytime we want.Also I would like for my self and family to be adopted in by a Christian Church family.So we have some kind of family that we could talk to or see at times,I don't know if a nursing home has a church in it,But I would like to feel peace with in myself.I believe in God,But I want to give my whole self to him.Well I know it's not much of a story and kind of short.But I'm not to good at describing things anymore.If you can help us Thank you very much,And if not Thank you anyways for wishing you could. :)Oh and there is one more thing I would like it if you could help to spread awareness about Alpha-1,Please and Thank you.

Wish Info

  • Posted: Feb 8, 2013 1:57 am
    Granted: Apr 26, 2013
  • Member: candikisses95
  • Member Since: Dec 7, 2012
  • Wishes Granted: 2 times
  • Raised: $50.00 Goal: $1,000.00
  •  
  • City: LaSalle
  • State: Illinois
  • Country: United States
  • Type: Need
  • Wish is for: Family
  • Category: Liver Disease
  • Cause: Computers & Electronics
  • Views: 2027
  • Comments: 20
  • Follows: 3

1 Accepted OffersLast offer 2 months ago

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  • Guest 2 months ago - Accepted!

    This donation was made by a guest.

Comments & Responses


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candikisses95 3 weeks ago

I thought,If maybe I updated my wish,So I can delete the old one,since it wasn't getting the attention we had hope for.

candikisses95 1 month ago

acorngirl,I'm sure she love it. I do not have a address for the Foster because I am not allowed to .But you could ask if you could send it To The Youth Service Beurau LaSalle,Il. 61301,Sorry I don't have a Phone number or address,But I'm sure if you The Youth Service Beauru that you would find a it at the 411.com.

acorngirl 1 month ago

I hope that you find more heroes. I cannot imagine how hard it would be to be separated from your childen and facing this illness.

If you like, I could send a gift to your daughter- I'm an artist and I make a variety of pretty things. Perhaps recieving a little pick-me-up would help and comfort her just a tiny bit?

If you'd like me to do this, message me your daughter's address at her foster home, or I could send it to her social worker? (((hugs)))

candikisses95 2 months ago

Well I guess that didn't change anything at all.I am now,In the first part Of getting to the live-in care facility,And my daughter is now in a Full-time Foster Family and and my son,Who knows where he is.I don't mean to offended anyone by saying Where are we still leave with grief.We can not talk,see,and hear,I'm sorry I don't know what else to














ttyl

candikisses95 2 months ago

Here's the latest update.My daughter is now in a Full-time Foster care home until she is a adult.I guess I am in the middle stage group home.Each room looks like a old hospital or a hotel except each one has a light about your room that you pull if you can,And someone will be there to help you asap.Nut please spread the word that we need 2 working Laptops.So we can see hear and talk to each other on it very easily.I don't know what else to say,Except,Thank you for helping and if not Thank you for trying,,,

leximay24 2 months ago

(Your daughter I was meaning could stay with you after school)

leximay24 2 months ago

I know a lady the state pays for her a nurse to come and sit with her 8 hours a day check into that its thru social services then when she gets out of school they would be leaving and she could stay with you at night. I know she would rather be with you !

leximay24 2 months ago

Praying for you! I hope god answers your prayers and grants this wish for you! My uncle was in an assures living place and they had church every week and many activities such as bingo! Hopefully you will find many friends there I hope your daughter is placed in a good home! Being 15 she should be able to stay home with you? Is the nursing home your only option?

stampincrazyrozinfo 3 months ago

You & your family are in my thoughts and prayers. May your wish get granted.

drockey74 3 months ago

Candi,
I am so saddened by this news. I too wish I was in a position to take your daughter in and love her as my own. My heart breaks for all of you. I will be lifting you up in prayer. Please email me with where you are so I can come visit you. I can support you in prayer and encouragement, and would try to connect with your daughter if possible. Here's my email: littlerockey@yahoo.com God Bless all of you as you journey through this difficult time. Dawn (Rush) Rockey

candikisses95 3 months ago

No Family and and the 2 friends I have can't she has Lupus and can not have the stress.And the other friend can not handle my daughters adhd and Bi-Polar.And yes she has a Dr.,meds and Therapy.My son is 20 and told me He wants nothing to do with me anymore.Because my daughter had to go to foster care and me a care facility.I was a burden to him so I made it so I was not any longer and which ever way I go he's not helping and hates me.And as far as the gf's house he recently walked out on her and my grand daughter.And besides It wasn't a place for my daughter to be at.But anyways she's happy where she's at.And until further notice I get to see her during the weekend.I have another friend with the same disease as I have and she has been helping us and to get closer to her,to have friends that are like family.The hospital here have told us theres nothing we can do here for you anymore.So I needed to get closer to the bigger Hospitals and specialists.My kids have always been at each others

cseeksamiracle 3 months ago

I don't understand why your family won't take in your daughter! No friends will?? I wish I had the means to support her. I would surly give her a place to stay. This breaks my heart! There has to be something more permanent than foster care! What about your sons gf's parents? Would they not be willing in order to keep them together??

daydreams09 3 months ago

this makes me so sad, I wish I was able to help, but sadly cannot. Offering prayers that many angels find you and help ease the situation with your family. many hugs

faith30 3 months ago

I will pray for you and I hope you get many heroes.

mommie817 3 months ago

you are very welcome sweetie